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Thread Number: 37885
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Original Message
"Requesting OT Power"

Posted by jbug on 12-07-12 at 05:42 PM
Most of you know my DH has Parkinson's Disease.
The struggles have become harder and harder with new problems coming along just about the time we get one tackled.

The biggest one now is his not being able to swallow. He had a Barium swallow test last March and another on Wed this week.
He failed this last one completely.

Jerry will get a PEG - which is a feeding tube. This will allow him to get the nutrition he needs as well as help prevent aspiration (food & liquids getting in his lungs) which can cause pneumonia.

This will be a lifestyle change for both of us but HE made the decision & I agree with him. He is tired of strangling & coughing & choking every time he tries to eat. We want him to get his strength back and get back to enjoying doing the things we like to do - minus eating of course .

Jerry's surgery is scheduled for Monday 10th at 8:30 (we have to be there at 6:30 - the hospital we have to use if 45 miles away).

I'm expecting to feel the power of OT all weekend long and especially on Monday morning. I can count on all of you.


a Syren special


Table of contents
  • RE: Requesting OT Power,agman, 06:15 PM, 12-07-12
  • RE: Requesting OT Power,Starshine, 06:22 PM, 12-07-12
  • RE: Requesting OT Power,CTgirl, 07:13 PM, 12-07-12
  • RE: Requesting OT Power,MKitty, 07:14 PM, 12-07-12
  • RE: Requesting OT Power,kingfish, 07:43 PM, 12-07-12
  • RE: Requesting OT Power,kidflash212, 07:45 PM, 12-07-12
  • RE: Requesting OT Power,cahaya, 08:35 PM, 12-07-12
  • RE: Requesting OT Power,DearAbby, 10:29 PM, 12-07-12
  • RE: Requesting OT Power,WyoGuy44, 00:23 AM, 12-08-12
    • RE: Requesting OT Power,cahaya, 00:35 AM, 12-08-12
      • RE: Requesting OT Power,WyoGuy44, 07:10 PM, 12-08-12
        • RE: Requesting OT Power,Puffy, 07:15 PM, 12-08-12
          • RE: Requesting OT Power,WyoGuy44, 07:41 PM, 12-08-12
        • RE: Requesting OT Power,jbug, 09:13 PM, 12-08-12
          • RE: Requesting OT Power,cahaya, 10:38 AM, 12-09-12
    • RE: Requesting OT Power,kidflash212, 12:24 PM, 12-08-12
    • RE: Requesting OT Power,agman, 10:17 PM, 12-08-12
  • RE: Requesting OT Power,tallgirl, 11:17 AM, 12-08-12
  • RE: Requesting OT Power,bondt007, 12:35 PM, 12-08-12
  • RE: Requesting OT Power,Karchita, 04:24 PM, 12-08-12
  • RE: Requesting OT Power,WyoGuy44, 04:31 PM, 12-08-12
  • RE: Requesting OT Power,jbug, 09:12 PM, 12-08-12
    • RE: Requesting OT Power,agman, 10:13 PM, 12-08-12
      • RE: Requesting OT Power,jbug, 00:41 AM, 12-09-12
        • RE: Requesting OT Power,kidflash212, 00:44 AM, 12-09-12
          • RE: Requesting OT Power,foonermints, 01:43 PM, 12-09-12
          • RE: Requesting OT Power,WyoGuy44, 06:49 PM, 12-09-12
            • RE: Requesting OT Power,kidflash212, 11:14 PM, 12-09-12
  • RE: Requesting OT Power,dabo, 01:23 AM, 12-09-12
  • RE: Requesting OT Power,Brownroach, 02:19 AM, 12-09-12
  • RE: Requesting OT Power,moonbaby, 12:11 PM, 12-09-12
  • RE: Requesting OT Power,foonermints, 01:40 PM, 12-09-12
  • RE: Requesting OT Power,MNgirl, 03:47 PM, 12-09-12
    • RE: Requesting OT Power,agman, 01:26 PM, 12-10-12
      • RE: Requesting OT Power,MNgirl, 01:55 PM, 12-10-12
        • RE: Requesting OT Power,agman, 02:31 PM, 12-10-12
          • RE: Requesting OT Power,MNgirl, 02:52 PM, 12-10-12
  • Good Luck tomorrow. ,VisionQuest, 04:33 PM, 12-09-12
  • RE: Requesting OT Power,jbug, 07:43 PM, 12-09-12
    • RE: Requesting OT Power,WyoGuy44, 08:04 PM, 12-09-12
  • RE: Requesting OT Power,Estee, 03:29 PM, 12-10-12
  • home again,jbug, 06:28 PM, 12-10-12
    • RE: home again,kidflash212, 07:07 PM, 12-10-12
      • RE: home again,jbug, 10:44 PM, 12-10-12
    • RE: home again,WyoGuy44, 07:20 PM, 12-10-12
      • RE: home again,jbug, 10:52 PM, 12-10-12
        • RE: home again,WyoGuy44, 06:27 PM, 12-11-12
  • RE: Requesting OT Power,jbug, 11:06 PM, 12-13-12
    • RE: Requesting OT Power,dabo, 11:10 PM, 12-13-12
  • RE: Requesting OT Power,kingfish, 09:18 AM, 12-14-12
  • RE: Requesting OT Power,bullzeye, 10:40 AM, 12-15-12

Messages in this discussion
"RE: Requesting OT Power"
Posted by agman on 12-07-12 at 06:15 PM
Poor guy!....Jbug both you and Jerry have all the agman family's thoughts and prayers!!!!!(((((ag hug)))))


"RE: Requesting OT Power"
Posted by Starshine on 12-07-12 at 06:22 PM
You've got it JBug

{{{Hugs}}}

And you should have him up and running for Christmas!


"RE: Requesting OT Power"
Posted by CTgirl on 12-07-12 at 07:13 PM
Sending OT Power, love and prayers to you and Jerry!


Cap'ns Cropfest 2010


"RE: Requesting OT Power"
Posted by MKitty on 12-07-12 at 07:14 PM
Good luck on the surgery for Monday!! Good thoughts and vibes coming your way for your DH


Crooning courtesy of Agman


"RE: Requesting OT Power"
Posted by kingfish on 12-07-12 at 07:43 PM
Good luck Junie. And Dave. Here for you.

"RE: Requesting OT Power"
Posted by kidflash212 on 12-07-12 at 07:45 PM
You can have all the good thoughts I can muster Jbug!



Capn2patch put me in motion!


"RE: Requesting OT Power"
Posted by cahaya on 12-07-12 at 08:35 PM
Keeping you and your hubby in my thoughts, cares and prayers.


Smurfy snowy holiday present by agman


"RE: Requesting OT Power"
Posted by DearAbby on 12-07-12 at 10:29 PM
Sending thoughts, prayers, and hugs your way.


tribe's Holiday Siggie Shop


"RE: Requesting OT Power"
Posted by WyoGuy44 on 12-08-12 at 00:23 AM
Jbug I hope d.h.gets better soon.

"RE: Requesting OT Power"
Posted by cahaya on 12-08-12 at 00:35 AM
Hey, Wyoming guy, welcome!

We're folks around here, and we kind of circle our wagons now and then when somebody needs it.

Drop us a note, tell us a lil' bit about yourself.

If you were indeed born in '44, you've got at least a few years on a lot of us.


"RE: Requesting OT Power"
Posted by WyoGuy44 on 12-08-12 at 07:10 PM
Cahaya i'm 44. Not born in 44. lol.
You were a newbie when i was posting back in the day.

"RE: Requesting OT Power"
Posted by Puffy on 12-08-12 at 07:15 PM
What was your old screen name?



"RE: Requesting OT Power"
Posted by WyoGuy44 on 12-08-12 at 07:41 PM
Guess.I will tell you if your right.P.s. I like the bowl puff

"RE: Requesting OT Power"
Posted by jbug on 12-08-12 at 09:13 PM
so you have to change your user name every year at your birthday?
Now wonder you look like a newbie.

"RE: Requesting OT Power"
Posted by cahaya on 12-09-12 at 10:38 AM
*laugh* This is funny!

"RE: Requesting OT Power"
Posted by kidflash212 on 12-08-12 at 12:24 PM
Welcome to the playground.

"RE: Requesting OT Power"
Posted by agman on 12-08-12 at 10:17 PM
Welcome to our community Wyoguy.


"RE: Requesting OT Power"
Posted by tallgirl on 12-08-12 at 11:17 AM
Good thoughts and prayers for you, your dh and rest of the family.


"RE: Requesting OT Power"
Posted by bondt007 on 12-08-12 at 12:35 PM
prayers to you, Bug...!



>Issued by "Q" and RollDdice


"RE: Requesting OT Power"
Posted by Karchita on 12-08-12 at 04:24 PM
I'm sorry that you are going through this, jb. Best of luck and ((hugs)) to both you and Jerry.



"RE: Requesting OT Power"
Posted by WyoGuy44 on 12-08-12 at 04:31 PM
Keep us updated Jbug. Wishing you and d.h.the best

"RE: Requesting OT Power"
Posted by jbug on 12-08-12 at 09:12 PM
Thank you all my wonderful friends.

Again last night we were up most of the latter part of the night. Every night after midnight, he wakes up having trouble breathing and trying to cough up whatever has gotten into his lungs. He's had a cold for over a week so there's extra to cough & his muscles don't work like normal.
Hopefully, when he no longer has to take food orally, he won't have this problem w/ stuff getting into his lungs.


I've stayed really busy today, but my mind stays with this every moment. He's teased me because I never have really liked to cook; so now I won't have to. But it will be so weird.
My family is very close; we have Sunday dinner all together after church; it's a social event. He says he can just sit with us; that it will be okay. I worry that he will become a hermit .

I'm trying to stay positive that this improves his life & his health.


Slicey took out the wrinkles '08

BTW, who is this wyoming guy? Do I know you? (that is not code)


"RE: Requesting OT Power"
Posted by agman on 12-08-12 at 10:13 PM
LAST EDITED ON 12-08-12 AT 10:16 PM (EST)

Oops sorry bug, I wrote this before I saw your post #20! You already have it figured out!


"RE: Requesting OT Power"
Posted by jbug on 12-09-12 at 00:41 AM
maybe it's Wayne!
maybe he moved to Wyoming!

"RE: Requesting OT Power"
Posted by kidflash212 on 12-09-12 at 00:44 AM
It's JSlice!!

or MattBen.


Damn this headache. It's got me thinking all crazy.


"RE: Requesting OT Power"
Posted by foonermints on 12-09-12 at 01:43 PM

» It's got me thinking all crazy«

So this is something new?

Anyway, I've still got the hat, but I'm not giving it back. I washed it and everything.


"RE: Requesting OT Power"
Posted by WyoGuy44 on 12-09-12 at 06:49 PM
Im not jslice. im d.h. I told puff and arkie.

"RE: Requesting OT Power"
Posted by kidflash212 on 12-09-12 at 11:14 PM
Who knew OT had the designated hitter rule? I always assumed we played by National League rules.

"RE: Requesting OT Power"
Posted by dabo on 12-09-12 at 01:23 AM
Late to the party, but hoping the best.

"RE: Requesting OT Power"
Posted by Brownroach on 12-09-12 at 02:19 AM
Power of OT coming your way. Hoping everything goes well, and thinking it will, jbug.

"RE: Requesting OT Power"
Posted by moonbaby on 12-09-12 at 12:11 PM
Sending good thoughts, jbug, and you will both be on my mind tomorrow.

"RE: Requesting OT Power"
Posted by foonermints on 12-09-12 at 01:40 PM
Best thoughts and prayers from the foonermints!
Definitely thinking of you and your DH tomorrow.

Syren


"RE: Requesting OT Power"
Posted by MNgirl on 12-09-12 at 03:47 PM
Sending good thoughts and prayers for both of you!


Chillaxin with Agman, man! March 2012


"RE: Requesting OT Power"
Posted by agman on 12-10-12 at 01:26 PM
HEY MN, where have you been hiding yourself lately?


"RE: Requesting OT Power"
Posted by MNgirl on 12-10-12 at 01:55 PM
Hi Agman! Oh, I've been around. Reverted back to my former lurker self a bit, lol. But, still here!



Chillaxin with Agman, man! March 2012


"RE: Requesting OT Power"
Posted by agman on 12-10-12 at 02:31 PM
It's good to see you "Chillaxin" here again.


"RE: Requesting OT Power"
Posted by MNgirl on 12-10-12 at 02:52 PM
Well, thank you! Good to see you, too and your Bumble. Looks like Hermey hasn't gotten to him yet, as he still has all his teeth.


Chillaxin with Agman, man! March 2012


"Good Luck tomorrow. "
Posted by VisionQuest on 12-09-12 at 04:33 PM
I will be sending positive thoughts your way.

"RE: Requesting OT Power"
Posted by jbug on 12-09-12 at 07:43 PM
Than ks everyone.

He has such a cold - I have a bit of one myself.
Might they cancel the surgery becasue he has a cold?

I had a surgery cancelled once because I got a bad cold & sore throat.


"RE: Requesting OT Power"
Posted by WyoGuy44 on 12-09-12 at 08:04 PM
(hugs jbug)

"RE: Requesting OT Power"
Posted by Estee on 12-10-12 at 03:29 PM
On the plus side, you can finally get him to try some new things.

If the cold makes him more vulnerable to infection, expect postponement.


"home again"
Posted by jbug on 12-10-12 at 06:28 PM
Surgery went as scheduled; rather quickly in fact.
We've been home for several hours.
He's napped on & off.
Since he has a cold, coughing is what is hurting his stomach the most. He can't cough hard cause it hurts too much. His throat muscles don't work well so he can't just clear his throat either.

His food has been delivered; the home health nurse won't be here for another hour (close to 5:30 pm) to teach us the procedures for feeding.

thank you for all the good thoughts and prayers.
We'll make it thru this.


"RE: home again"
Posted by kidflash212 on 12-10-12 at 07:07 PM
Glad he's home and resting. I'm going to keep thinking good thoughts for both him and you as this period of adjustment continues.

"RE: home again"
Posted by jbug on 12-10-12 at 10:44 PM
thanks Kid.

"RE: home again"
Posted by WyoGuy44 on 12-10-12 at 07:20 PM
Glad the surgery went quickly jbug. You and D.H. are in my prayers.

"RE: home again"
Posted by jbug on 12-10-12 at 10:52 PM
LAST EDITED ON 12-11-12 AT 09:50 AM (EST)

thanks Wyo.
still trying to figure if you're a newbie or an re-tread.

ETA: my DH & I thank you dear.


"RE: home again"
Posted by WyoGuy44 on 12-11-12 at 06:27 PM
Now you know jbug. I'm a retread. lol

"RE: Requesting OT Power"
Posted by jbug on 12-13-12 at 11:06 PM
We're doing really well with this.
It's not hard at all. Sorta odd but easy. He sure "eats" faster than I do

The first formula food they brought was Glucerna 1.0; it has 1430 calories per can & he was to have 4 per day.
Then they decided he should be getting the 1.5 which has 1500 calories per can & he should have 5 cans per day.
& it's for diabetics.

Doesn't that sound crazy?
I know they want him to gain a bit of weight back and he needs the nutrition, but 7500 calories a day?
We got a new scale so we can weigh regularly.
If it's accurate, he's lost 2.4 lbs since Tues.
He should be gaining, not losing.

On the flip side?
I? have lost 6 lbs since I last weighed a few months ago;
and .2 lbs since Tues.


"RE: Requesting OT Power"
Posted by dabo on 12-13-12 at 11:10 PM
Glad things are going okay, he should start putting on weight and feeling better soon.

"RE: Requesting OT Power"
Posted by kingfish on 12-14-12 at 09:18 AM
Oh gosh, JunieBug, such a thing. My heart is with you.

"RE: Requesting OT Power"
Posted by bullzeye on 12-15-12 at 10:40 AM
So sorry to be late with my well wishes, but glad things appear to be going well.

Sending good thoughts for you and DH.

{{{HUGS}}}